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Man Up: Parenting a Child Born with a Rare Genetic Syndrome
FOR MORE INFORMATION:
The 5P- Society (Cri du Chat)
https://fivepminus.org/
Cri du Chat Society Facebook Page
https://www.facebook.com/CriDuChatSociety
National Organization for Rare Disorders
https://rarediseases.org/rare-diseases/cri-du-chat-syndrome
NOTABLE QUOTES FROM THIS EPISODE:
You are welcome you to share the wisdom from this episode. Please be sure to credit: “Ep. 5, Damas Manderson, Courtesy of Wisdom Shared Podcast with Carole Blueweiss.”
22:30 “When you’re hurt, you hurt others”
30:59 “If empathy was the first point of reference for people, that would go a long way”
39:07 - “A handful of special needs parents can fall into the category of where the normal children become caregivers whether they want it or not.”
44:00: “What does it cost me? It’s only cost me money. What have I gained? A loving wholesome family, with a value that we will carry forever. My family is my legacy.”
50:00 “There’s not an instruction book for how to be an effective special needs mother and father or husband and wife.”
51: “Kindness doesn’t mean weakness. Kindness means strength.”
EDITOR’S NOTE:
Damas and Dina Manderson intend to start a foundation for their daughter, Kennedy Rose. These episode notes will be updated to include foundation information when it is available. (1/9/2021)
Find and Follow Carole and Wisdom Shared:
- https://www.caroleblueweiss.com/
- Subscribe to YouTube channel
- Follow and send a message on Facebook
- Follow and send a message on LinkedIn
- Follow on Instagram
- Follow on TikTok
- Follow on Threads
- Audio Engineering by Steve Heatherington of Good Podcasting Works
- Co-Producer and Marketing Coordinator: Kayla Nelson
- Production Assistant: Becki Leigh
View all episodes
By Dr. Carole Blueweiss
5
5252 ratings
FOR MORE INFORMATION:
The 5P- Society (Cri du Chat)
https://fivepminus.org/
Cri du Chat Society Facebook Page
https://www.facebook.com/CriDuChatSociety
National Organization for Rare Disorders
https://rarediseases.org/rare-diseases/cri-du-chat-syndrome
NOTABLE QUOTES FROM THIS EPISODE:
You are welcome you to share the wisdom from this episode. Please be sure to credit: “Ep. 5, Damas Manderson, Courtesy of Wisdom Shared Podcast with Carole Blueweiss.”
22:30 “When you’re hurt, you hurt others”
30:59 “If empathy was the first point of reference for people, that would go a long way”
39:07 - “A handful of special needs parents can fall into the category of where the normal children become caregivers whether they want it or not.”
44:00: “What does it cost me? It’s only cost me money. What have I gained? A loving wholesome family, with a value that we will carry forever. My family is my legacy.”
50:00 “There’s not an instruction book for how to be an effective special needs mother and father or husband and wife.”
51: “Kindness doesn’t mean weakness. Kindness means strength.”
EDITOR’S NOTE:
Damas and Dina Manderson intend to start a foundation for their daughter, Kennedy Rose. These episode notes will be updated to include foundation information when it is available. (1/9/2021)
Find and Follow Carole and Wisdom Shared:
- https://www.caroleblueweiss.com/
- Subscribe to YouTube channel
- Follow and send a message on Facebook
- Follow and send a message on LinkedIn
- Follow on Instagram
- Follow on TikTok
- Follow on Threads
- Audio Engineering by Steve Heatherington of Good Podcasting Works
- Co-Producer and Marketing Coordinator: Kayla Nelson
- Production Assistant: Becki Leigh
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