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Medical Mom Talk
Medical Mom Talk episodes
- Sanfilippo Syndrome and Spreading Advocacy WorldwideWelcome to episode 4 of Medical Mom Talk. This week I had the lovely privilege to speak with Ashley Haywood, a mother, an influencer, and an advocator. After her daughter, Sadie Rae, was born, she began her journey in advocating for answers. Her advocacy journey didn't stop there. Once Sadie was diagnosed with Sanfilippo Syndrome, Ashley knew her fight for treatment and inclusion needed to continue. Join in on listening to her incredible journey and follow along her social media accounts to fight for children with Sanfilippo.Resources:>> Cure Sanfilippo and Sanfilippo resources:CureSanfilippoFoundation.org>> Sadie Rae Social Media Accounts:https://www.savingsadierae.org/https://www.facebook.com/SavingSadieRaehttps://www.tiktok.com/@savingsadieraehttps://www.instagram.com/savingsadieraeSAY HELLO!Website -> brand.page/medicalmomtalkInstagram -> @medicalmomtalkEmail -> [email protected]Music Licensing: PE4P2QVTKX24VPLC46 min
- Strabismus, CVI, Seizure Disorder and How a Diagnosis Leads to Maximum LoveThanks for joining our third episode of Medical Mom Talk. This week, I had the privilege to chat with Lindsay Savage, a mother who defines resilience and strength. After the onset of seizures, her son, Sterling, was quickly diagnosed with Strabismus and Cortical/Cerebral Visual Impairment (CVI). This diagnoses has shaken their world, but their family has paved the way of healing/treatment with love and joy. Join us as Lindsay shares her story of resiliency and unconditional gratitude.Resources:>> Light Box Play Bundlehttps://www.westminstertech.com/products/light-box-play-bundle?srsltid=AfmBOopTXG528YKcOGJGGBA2J2ObuTISoRTyXysYc6ugnh2H7r747puH>> Children's Esotropia/Exotropia/Strabismus/Amblyopia Support Page: https://www.facebook.com/groups/188023837921443/SAY HELLO!Website -> brand.page/medicalmomtalkInstagram -> @medicalmomtalkEmail -> [email protected]Music Licensing: PE4P2QVTKX24VPLC40 min
- Cerebral Palsy, Hemiplegia, and How Family and Community Can Help You Defy All OddsWelcome for another episode of Medical Mom Talk. This week we talk to Erin Kutac, an incredible mother who has done all she can to help her son overcome all odds. A story of how family and community can make the difference in helping our children overcome obstacles and defy all odds.Resources:>> The Children’s Hemiplegia and Stroke Association (CHASA) - https://chasa.org/>> Ronald McDonald House - https://rmhc.org/SAY HELLO!Website -> brand.page/medicalmomtalkInstagram -> @medicalmomtalkEmail -> [email protected]Music Licensing: PE4P2QVTKX24VPLC36 min
- Progressive Familial Intrahepatic Cholestasis and Navigating Life After TransplantIts the very first episode of Medical Mom Talk (MMT), what a journey it has been to get to this moment. This episode, I wanted to focus on how Medical Mom Talk came to light and our story of our sweet son and his journey with a rare genetic disorder, Progressive Familial Intrahepatic Cholestasis (PFIC) and navigating life after his life saving liver transplant.Resources:> The Children’s Organ Transplant Association (COTA) helps children and young adults who need a life-saving transplant by providing fundraising assistance and family support: https://cota.org/> PFIC Network to inspire hope in the PFIC Community: https://www.pfic.org/SAY HELLO!Website -> brand.page/medicalmomtalkInstagram -> @medicalmomtalkEmail -> [email protected]Music Licensing: PE4P2QVTKX24VPLC45 min
- Welcome to Medical Mom TalkWhen you are told about your child's medication diagnosis, the world instantly becomes a scary, lonely, confusing place to navigate. Between doctors appointments, sleepless nights, people's misconceptions - it can be a LOT. This is why I created Medical Mom Talk, a place where moms can come and share their experiences and journey through their child's diagnosis. Where real, raw, beautiful stories are told and where true advice, connection, and community is born.My name is Kersey Henderson, and when my son was diagnosed with a rare genetic disorder, I felt it all. That is why I created Medical Mom Talk, because I don't want mom's to do this alone. I want to build a community that mom's can come to and share their experiences of being a medical mom. I hope through this journey, everyone can find something beneficial along the way.instagram: @medicalmomtalkfacebook: Medical Mom Talkwebsite: https://brand.page/medicalmomtalkMusic Licensing: VZW0PIOE47ZSEXRM2 min
About Medical Mom Talk
From the publisher's feed
Each week, I bring you a new exclusive interview to discuss different medical diagnoses from the perspective of the heroes behind the child, us, moms.
Each interview, we will walk a different diagnosis through the perspective of the mom. We will discuss their child's story and child’s diagnosis and get into the details of their journey through the diagnosis, advice they would give to other moms, resources they have/know of for other moms to use, information on pages to follow, or if there is research that is coming out soon.
I pray through this journey we can connect moms who are navigating their child's diagnosis, a mom who needs their story to be told, a mom looking for advocacy, connection, and community.
Welcome, to Medical Mom Talk.