Meniere's Muse

In this episode, Heather sits down with the Development Director at VeDA (Vestibular Disorders Association), who brings over 30 years of nonprofit fundraising experience to the conversation.  From regional theater to healthcare, to programs offering chess to low-income students, he has helped organizers raise millions of dollars to fulfill their missions.  For Paul, fundraising isn’t just about the money, it’s about the people, relationships and the shared mission that binds communities together.

In this conversation, we discuss:

~  Why fundraising is really about connection, not just donations

~ How you can support in ways that feel authentic, through words, art, social media or simply starting conversations

~ Why balance is a right, not a luxury

~ How to invite your friends and family into supporting the vestibular community

This episode is an invitation to participate.  Whether through a post, poem, donation or a partnership, there’s a way for YOU to join in!

More on vestibular disorders www.vestibular.org

Are you a vestibular patient- PLEASE take a few moments and sign this registry The Dizziness, Vertigo and Imbalance Patient Registry - Vestibular Disorders Association

Connect with Heather:  www.instagram.com/menieresmuse

Or email her at [email protected]

Thank you for being here! 

Be sure to use the hashtags #balanceawarenessweek #vestibulardisordersassociation #menieresmuse #makevestibularvisible

What does support really look like when you have a chronic illness?  In this deeply personal episode, I share an essay I wrote during the early days of my dizzy journey, a time marked by misdiagnosis, fear and overwhelming change.

This episode is more than a reflection.  It's a conversation about how support shows up, through partners, children, faith communities and sometimes even in the quiet spaces we least expect.  In this episode, I share what it's like to be held with compassion and how we can find or build meaningful support when it doesn't come easily.

Whether you have a strong support system or you’re still searching for one, this episode is for you.  You are seen, you are believed, and you are not alone.

VeDA Support Groups Online Support Groups - Vestibular Disorders Association

Lara’s private FB Support Group (2) Mummy Seeing Double Support Group | Facebook

“8 Minute, One Connection”  S3E52 The podcast episode Heather shares about when you need support from a trusted friend https://open.spotify.com/episode/0XWstWOI5u1LU6F1el00cj?si=drl2SefMTDe6f9k58tdWuA

If you would like more information on vestibular disorders www.vestibular.org

If you would like to reach out to me, Heather, please email me at [email protected] or find me on Instagram

Thank you for being here! Don't forget to link, share and subscribe!

#support #supportgroups #menieres #SCCD #vestibularmigraine #medicallyretired #familysupport #vestibular #onlinesupportgroups

In this episode of Vestibular Minutes, we’re talking about something that’s both sensitive and important—how to recognize red flags when someone promises a "cure" for Meniere’s disease.

While it's natural to hope for relief, not all advice out there is trustworthy, and some people may use scientific language or emotional pressure to take advantage of vulnerable moments.

Join me as we unpack how to protect ourselves and each other and why trusting your intuition is one of the most powerful tools you have. Real hope doesn’t come from false promises, it comes from community and clarity.

Find me on Instagram

Email me at [email protected]

For more information on vestibular disorders www.vestibular.org

VeDA also has a helpline for dizziness, imbalance and/or vertigo 1-800-837-8428

In this 1st episode of Vestibular Minutes of the Meniere's Muse Podcast, we explore the power of asking for support using the simple question: "Do you have 8 minutes?"

Inspired by a thought-provoking reel by Simon Sinek, Heather discusses how just eight minutes of someone's time can bring comfort, build trust, and deepen emotional connections, especially for those navigating the challenges of vestibular disorders. Learn how to signal your need for help and create meaningful moments of connection in just a few minutes.

To connect with me in Instagram

Email me

Watch reel with Simon Sinek on this theory

For more information on vestibular disorders visit the VeDA website

VeDA has a help line for dizziness, imbalance and/or vertigo 1-800-837-8428

Suicide and crisis line in the USA, 988

If you require further medical attention, please reach out to your local emergency services or call 911-if in the USA.

I learned a lot during my unexpected sabbatical, and now I'm excited to be back! In this episode, I’m sharing the key takeaways from my time away. From unexpected lessons to moments of personal growth, I’m diving into what I discovered about myself, my work, and life along the way. Whether you’re considering a sabbatical or just curious about the impact of a break, join me as I reflect on the valuable insights I’m bringing back with me.

I would love to know what you want more of this year! Reach out to me:

Instagram

For more information on vestibular disorders

I've missed you!

Today, we revisit Patrick as he shares how harnessing his power of belief has helped improve and, in some instances, eliminated some of the symptoms associated with Meniere's. He shares more deeply into his personal challenges and his story on Episode 12 of Season 1 of the Meniere's Muse Podcast, so be sure to listen!

Scrolling Instagram, years ago I came across this stunning human, mermaiding. Watching her was hypnotic and our daughter became obsessed. After sometime I learned she had Meniere's. Today, Cally is here to share her story. She is a gentle soul and nature enthusiast, through her ups and downs, highs and lows she has a newfound appreciation for life. She is a new VeDA Ambassador and is looking forward to connecting with other warriors and sharing each others WINS!

In this episode, Cally shares about these and other topics:

~ fluctuating hearing loss, vertigo, tinnitus, anxiety

~ sensory overload, visual sensitivity, drop attack, migraine

~ grief, embracing symptoms, living life anyway.

Connect with Cally:

Instagram

Connect with Heather:

Instagram

YouTube

To pick up your copy of Dear Meniere's Letters and Art: A Global Meniere's Project (Book, all proceeds go for Meniere's research)

Email Heather

Leave me a voicemail

If you would like to learn more about vestibular disorders or to donate visit the Vestibular Disorders Association website.

Register for LIFE REBALANCED LIVE for March2024.

HELP MAKE VESTIBULAR VISIBLE! Share, tag, follow and review!

Remember to love and be gentle with yourself, lean on this beautiful community and lastly believe healing is possible!

See you soon warriors!

Music: Bensound.com/royalty-free-music

License code: Q25BEF068CTQS5M6

#menieres #menieresdisease #vestibular #vestibularmigraine #vedaambassador #meditation #cleaneating #mermaiding #anxiety #tinnitus #habituation #hearingloss #vertigo #sensoryoverload #visualsensitivity #healyourheadachebook #migrainevariant