September 09, 2021

Mental health concerns and connecting

13 minutes

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In this episode, I discuss how early in our journey as special needs parents, we realized we needed help from a mental health perspective. Once I began healing from my own trauma, I started seeking out others who were like us. We searched for and found support groups locally, and I created my own group on Facebook, which at this time was a brand new thing. The group is called "Polymicrogyria Support". Today, in 2021 there are over 2500 families sharing and supporting eachother on this group.

Adapting is hard, and as a young Mom with a baby/child who has been diagnosed with life threatening disabilities, it was very hard to navigate the world of my typical children at the same time. I wanted to be the best in both worlds, but most of the time I felt isolated and odd.

Maybe you know someone who is a caregiver for a disabled or medically fragile child/sibling/friend etc. You may be here, because you have connected with me already on this topic. I am so excited to have you here.

I am going to continue sharing my stories of adapting, offering support and encouragement, and sharing my own struggles and fears, some of which are literally happening as I type this.

This is the adapted life podcast. Building resiliency as I adapt my life around the needs of my amazing but very medically fragile 23 year old son Daniel.

You can find me on YouTube, where I have a Vlog, or video journal of our life.

https://www.youtube.com/channel/UCQr7Ot0J0o6_gRnG_fJvzDg

I welcome input and feedback, and sponsorship opportunities. Learning and building here, with the goal of greater encouragement and support for those who need to learn how to adapt, and that a beautiful amazing life is possible, despite the hardships and trauma you have been dealt.

May you have a Blessed day, lots of smiles, and happy adapting.

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