About 6 months ago they got Jacks diagnosis, and all the mile stone talk prior to that, well just went out the window and this made things tough and tricky for Mike. After I reached out to him, he heard me talk about the poem ‘Welcome to Holland’ which has allowed him to see where they are and give some perspective of mental processing of it all. Faith has been a big part of Mikes life and he’s honest about his battle which continues to challenge him. He’s honest about what it means to him and how he feels like he was let down by the big man. The diagnosis was received over the phone while he was at work giving a sales presentation.. needless to say he left work right way and cried on the way home in the car. That night they spoke to a family in Canada who have a boy with the same disease, that conversation gave them the faith and ability to look forward for a cure which has just started being trialed. They have started fundraising not just for Jack, but for 10 children who have SPG50. The target is $2,500,000 the links are here and they are serious! https://linktr.ee/jackscornerfoundation I take my hat off to Mike because as he tells me, every memory of Jack (videos especially) as he grown older, year on year, it’s hard to enjoy sometimes because he sees the effect of the ultra rare disease which slowly takes basic abilities away. Again, it’s real, it’s life, it’s how it is. https://rarediseases.org/rare-diseases/spastic-paraplegia-50/