Listen to patients impacted by myeloproliferative neoplasms (MPNs) discuss the importance of speaking up and spelling out how their MPNs affect them. Understand why saying they were “fine” was not enough for their MPN journeys. Tune in to discover patient stories, real life experiences, and useful tips to have informed conversations with your Healthcare Professional.

• Get the FINE Communication Workbook at fineisnotenough.com 

Tune in as actor, director, and health advocate LeVar Burton explores the importance of prioritizing your own health when living with the rare, chronic blood cancers called myeloproliferative neoplasms (MPNs). Burton is joined by Kathryn and Andrea, two MPN patients, as they reveal that the best way to manage progressive diseases like MPNs is through consistent visits with Healthcare Professionals. Hear them share how open, honest communication with their healthcare teams helps them get the care they need. Also hear from MPN Peers Kathy, Dave, and Marilyn. Listen as they talk about the support and inspiration they get by connecting with others in the MPN community through the Voices of MPN® CHAMPN Connections program. 

• Register now for MPN information, resources, and support 

Listen to a Healthcare Professional, Incyte Oncology Clinical Nurse Educators, and patients discuss the rare, chronic blood cancers called myeloproliferative neoplasms (MPNs) and why informed conversations are important for proper patient care. Learn that when patients tell their MPN healthcare team how their condition affects their lives, they help ensure they get the care and support they need. Hear about telehealth and how regular check-ins are key for people with MPNs. Hear conversation tips to use at healthcare appointments and find out how being specific about your MPN experience can lead to more informed discussions.

• Register now for useful MPN information and resources

For people living with a myeloproliferative neoplasm (MPN), such as polycythemia vera (PV), essential thrombocythemia (ET), or myelofibrosis (MF), it is not uncommon to sometimes feel alone on the MPN journey. That’s because MPNs are considered rare diseases. Connecting with an MPN peer to share information, insights, and experiences may help reinforce that you’re part of a greater community—and that you’re not alone on your journey. 

Hear from Matt and Josh, two members of the MPN Community who recently had the opportunity to connect with each other through CHAMPN Connections, a peer-to-peer program that provides MPN patients and caregivers with the opportunity to connect one-on-one with a peer who shares a similar experience.

Listen as these two individuals connect for the first time and have a conversation about their individual PV journeys, from initial diagnosis and beyond. Find out what they had in common—and how they were able to inform, inspire, and empower each other.

Learn how to connect one-on-one with a member of the MPN community by registering for CHAMPN Connections at voicesofmpn.com/connections.

The content presented is brought to you by Incyte Corporation. The content presented in this podcast is not medical advice and should not replace a conversation with your Healthcare Professional, who is the best source of medical information about your individual diagnosis and management plan.

Listen to MPN expert Dr. Krisstina Gowin, Assistant professor of medicine in the division of Hematology/Oncology at the university of Arizona Cancer Center, and renowned comic book artist J.G. Jones discuss important topics for those living with an MPN, like the value of education and ways to work with your Healthcare Professional to be an advocate for your health. Dr. Gowin, J.G. Jones, and host, Gina, will also discuss the value of an individualized approach for patients with MPNs.

• Register now for useful MPN information and resources 

• See the Rare Reflections: MPNs Unmasked series 

Listen to renowned comic book artist, J.G. Jones talk about his myeloproliferative neoplasm (MPN) journey and his new portrait series, Rare Reflections: MPNs Unmasked, specifically created to reveal the powerful and personal stories of individuals who are also impacted by an MPN. J.G. is joined by Dr. Krisstina Gowin, an MPN expert who is also an assistant professor of medicine in the division of Hematology/Oncology, at the University of Arizona Cancer Center.

• See the Rare Reflections: MPNs Unmasked series 
• Register now for useful MPN information and resources 

The content presented is brought to you by Incyte Corporation. The content presented in this podcast is not medical advice and should not replace a conversation with your Healthcare Professional, who is the best source of medical information about your individual diagnosis and management plan.