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When Kathy Chester lost her eyesight in one eye on Mother's Day over twenty years ago, she had no idea this would be the beginning of her journey with multiple sclerosis. As a former gym owner and lifelong athlete, her first instinct was to "run it out"—pushing her body harder in hopes of defeating the disease through sheer determination. Today, that fighting spirit has evolved into something far more powerful.
Kathy joins us to share her transformation from newly diagnosed patient to empowered advocate as the host of the MS Disrupted podcast and coach for people living with chronic illnesses. Her philosophy challenges conventional thinking: instead of focusing on limitations, she asks "what am I willing to lose?"—a question that sparked her movement-focused approach to managing MS and rheumatoid arthritis.
The conversation delves into the complex emotional landscape of chronic illness, particularly the anxiety that often accompanies diagnosis and progression. All three speakers acknowledge the struggle to extend grace to themselves despite readily offering it to others. Kathy emphasizes the importance of connecting with people who truly understand this unique anxiety, noting that support from those with similar experiences provides validation that well-meaning but uninformed supporters cannot.
From practical advice about distinguishing between normal exercise soreness and disease symptoms to red flags when evaluating potential partnerships with health companies, Kathy offers invaluable insights gained through both personal experience and professional expertise. Her expanded support group acknowledges that autoimmune conditions often appear in clusters, creating spaces where people with multiple diagnoses can find comprehensive understanding.
Whether you're living with chronic illness, supporting someone who does, or simply interested in transforming how we approach health challenges, Kathy's disrupting philosophy offers a refreshing perspective. Connect with her through Instagram @msdisrupted or email [email protected] to learn about her one-on-one coaching opportunities and upcoming group sessions.
https://www.msdi
Send us a text
Delivering Happy Mail around the world!
We have sent thousands of cards to isolated illness warriors, facilitated hundreds of pen pal relationships, and reached countless family members, caregivers, and medical professionals with messages of hope and acknowledgment.
Join our mission to send 100,000 cards of support to patients with long-term illnesses.
About our organization | Cards2warriors
Are you living with a chronic illness and want to make your voice heard? Rare Patient Voice connects patients and caregivers with research opportunities—so you can share your experiences and get paid for your time! Your insights help drive real change in healthcare.
Let's Get Started - Rare Patient Voice
Keep your spoons close and support system closer.
Support the show
Support:
https://rarepatientvoice.com/Myspooniesisters/
https://www.etsy.com/shop/MySpoonieSisters
https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen10)
Website: https://myspooniesisters.com/
Discount Codes: GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off
By Jen Weaver5
1717 ratings
When Kathy Chester lost her eyesight in one eye on Mother's Day over twenty years ago, she had no idea this would be the beginning of her journey with multiple sclerosis. As a former gym owner and lifelong athlete, her first instinct was to "run it out"—pushing her body harder in hopes of defeating the disease through sheer determination. Today, that fighting spirit has evolved into something far more powerful.
Kathy joins us to share her transformation from newly diagnosed patient to empowered advocate as the host of the MS Disrupted podcast and coach for people living with chronic illnesses. Her philosophy challenges conventional thinking: instead of focusing on limitations, she asks "what am I willing to lose?"—a question that sparked her movement-focused approach to managing MS and rheumatoid arthritis.
The conversation delves into the complex emotional landscape of chronic illness, particularly the anxiety that often accompanies diagnosis and progression. All three speakers acknowledge the struggle to extend grace to themselves despite readily offering it to others. Kathy emphasizes the importance of connecting with people who truly understand this unique anxiety, noting that support from those with similar experiences provides validation that well-meaning but uninformed supporters cannot.
From practical advice about distinguishing between normal exercise soreness and disease symptoms to red flags when evaluating potential partnerships with health companies, Kathy offers invaluable insights gained through both personal experience and professional expertise. Her expanded support group acknowledges that autoimmune conditions often appear in clusters, creating spaces where people with multiple diagnoses can find comprehensive understanding.
Whether you're living with chronic illness, supporting someone who does, or simply interested in transforming how we approach health challenges, Kathy's disrupting philosophy offers a refreshing perspective. Connect with her through Instagram @msdisrupted or email [email protected] to learn about her one-on-one coaching opportunities and upcoming group sessions.
https://www.msdi
Send us a text
Delivering Happy Mail around the world!
We have sent thousands of cards to isolated illness warriors, facilitated hundreds of pen pal relationships, and reached countless family members, caregivers, and medical professionals with messages of hope and acknowledgment.
Join our mission to send 100,000 cards of support to patients with long-term illnesses.
About our organization | Cards2warriors
Are you living with a chronic illness and want to make your voice heard? Rare Patient Voice connects patients and caregivers with research opportunities—so you can share your experiences and get paid for your time! Your insights help drive real change in healthcare.
Let's Get Started - Rare Patient Voice
Keep your spoons close and support system closer.
Support the show
Support:
https://rarepatientvoice.com/Myspooniesisters/
https://www.etsy.com/shop/MySpoonieSisters
https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen10)
Website: https://myspooniesisters.com/
Discount Codes: GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

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