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Navigating the Next Steps: Ongoing Challenges with My Neurodivergent Child
In this heartfelt episode, Jess shares an intense and emotional journey of her son Hawaiki's early health struggles, focusing on his time in the Queensland Children’s Hospital. She details his repeated hospitalizations, a series of intense medical evaluations including MRIs and sleep studies, and the challenges of dealing with his complex medical needs. The narrative provides a deep dive into the uncertainties and emotional turmoil faced by Jess as she navigates the medical system, interacts with other parents in similar situations, and finds small moments of gratitude amidst overwhelming challenges.
Key Takeaways:
How Jess Navigates Medical Challenges: A detailed exploration of the medical procedures and hospital life surrounding Hawaiki's care.
Why Emotional Resilience is Critical: Jess's personal recount of the emotional highs and lows, demonstrating the crucial role of resilience in coping with a child's illness.
Importance of Community Support: Emphasizes the role of support from medical staff and connections with other parents in similar situations.
Chapters:
- Introduction and Background (0:00-0:36)
- Medical Evaluations and Hospital Transfers (0:37-2:38)
- Intensive Care and Family Involvement (2:39-3:08)
- First Family Meeting and Emotional Responses (3:12-4:23)
- Further Tests, Diagnoses, and Hospital Experiences (4:24-21:40)
Quotes:
- Living through this life with babies with high complex needs is extremely overwhelming. It doesn't just affect that child, it affects the entire family.
- Caring for a child with special needs can transform your entire perspective on life and family.
New Therapy Slots Available: Due to popular demand, we opened up an extra day at her practice in Oxenford, offering revolutionary therapies for neurodivergent children. Limited spots available—click this link to inquire https://www.halaxy.com/book/little-superheroes/location/1140031
Consultation & Training Services: We also offer consultation and training services to childcare centres and schools with special needs departments. If you know anyone who could benefit, please contact us 0410 053 611 / [email protected]
Connect with us:
- www.littlesuperheroes.com.au
- Instagram: https://www.instagram.com/littlesuperheroes_/
- Facebook: https://www.facebook.com/profile.php?id=100085361951225
Interested in being a podcast guest? Fill out the form https://forms.gle/zNbMezugBZxAJxBa6
For inquiries, guesting opportunities, or collaborations, reach out to us at [email protected]
View all episodes
By Jess NgaheuIn this heartfelt episode, Jess shares an intense and emotional journey of her son Hawaiki's early health struggles, focusing on his time in the Queensland Children’s Hospital. She details his repeated hospitalizations, a series of intense medical evaluations including MRIs and sleep studies, and the challenges of dealing with his complex medical needs. The narrative provides a deep dive into the uncertainties and emotional turmoil faced by Jess as she navigates the medical system, interacts with other parents in similar situations, and finds small moments of gratitude amidst overwhelming challenges.
Key Takeaways:
How Jess Navigates Medical Challenges: A detailed exploration of the medical procedures and hospital life surrounding Hawaiki's care.
Why Emotional Resilience is Critical: Jess's personal recount of the emotional highs and lows, demonstrating the crucial role of resilience in coping with a child's illness.
Importance of Community Support: Emphasizes the role of support from medical staff and connections with other parents in similar situations.
Chapters:
- Introduction and Background (0:00-0:36)
- Medical Evaluations and Hospital Transfers (0:37-2:38)
- Intensive Care and Family Involvement (2:39-3:08)
- First Family Meeting and Emotional Responses (3:12-4:23)
- Further Tests, Diagnoses, and Hospital Experiences (4:24-21:40)
Quotes:
- Living through this life with babies with high complex needs is extremely overwhelming. It doesn't just affect that child, it affects the entire family.
- Caring for a child with special needs can transform your entire perspective on life and family.
New Therapy Slots Available: Due to popular demand, we opened up an extra day at her practice in Oxenford, offering revolutionary therapies for neurodivergent children. Limited spots available—click this link to inquire https://www.halaxy.com/book/little-superheroes/location/1140031
Consultation & Training Services: We also offer consultation and training services to childcare centres and schools with special needs departments. If you know anyone who could benefit, please contact us 0410 053 611 / [email protected]
Connect with us:
- www.littlesuperheroes.com.au
- Instagram: https://www.instagram.com/littlesuperheroes_/
- Facebook: https://www.facebook.com/profile.php?id=100085361951225
Interested in being a podcast guest? Fill out the form https://forms.gle/zNbMezugBZxAJxBa6
For inquiries, guesting opportunities, or collaborations, reach out to us at [email protected]