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NDF Talks with: GNE Myopathy Patient, Amy
“It is hard on my family, but we go on this journey together and I think it helps us. We are stronger together as a family..”
-Amy, on her and her 3 siblings all having GNEM
About NDF: Our mission is to enhance the quality of the lives of people living with GNE Myopathy through advocacy, education, outreach, and funding critical research focused on treatments and a cure.
To learn more about GNE Myopathy visit: https://www.CureGNEM.org
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By Neuromuscular Disease Foundation“It is hard on my family, but we go on this journey together and I think it helps us. We are stronger together as a family..”
-Amy, on her and her 3 siblings all having GNEM
About NDF: Our mission is to enhance the quality of the lives of people living with GNE Myopathy through advocacy, education, outreach, and funding critical research focused on treatments and a cure.
To learn more about GNE Myopathy visit: https://www.CureGNEM.org