"NDF is our big community & strength & force to do all these things. If NDF were not there we would not make it. With NDF I'm sure the cure will be found."
-Maya
About NDF: Our mission is to enhance the quality of the lives of people living with GNE Myopathy through advocacy, education, outreach, and funding critical research focused on treatments and a cure.
To learn more about GNE Myopathy visit: https://www.CureGNEM.org

"NDF is our big community & strength & force to do all these things. If NDF were not there we would not make it. With NDF I'm sure the cure will be found." -Maya About NDF: Our mission is to enhance the quality of the lives of people living with GNE Myopathy through advocacy, education, outreach, and funding critical research focused on treatments and a cure. To learn more about GNE Myopathy visit: https://www.CureGNEM.org

"NDF is our big community &amp; strength &amp; force to do all these things. If NDF were not there we would not make it. With NDF I'm sure the cure will be found."
-Maya
About NDF: Our mission is to enhance the quality of the lives of people living with GNE Myopathy through advocacy, education, outreach, and funding critical research focused on treatments and a cure.
To learn more about GNE Myopathy visit: https://www.CureGNEM.org

NDF Talks with: GNE Myopathy Patient, Maya

Welcome to the Neuromuscular Disease Foundation's podcast "NDF TALKS…”

Each episode features a GNE Myopathy community member’s personal experience with GNE Myopathy.
Participants will include patients, scientists, caregivers and family members, all sharing the triumphs and sometimes tribulations of life with this rare disease in order to provide potentially helpful and supportive information for anyone whose life is touched by GNE Myopathy. 

About NDF: Our mission is to enhance the quality of the lives of people living with GNE Myopathy through advocacy, education, outreach, and funding

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Non-Profit

Welcome to the Neuromuscular Disease Foundation's podcast "NDF TALKS…” Each episode features a GNE Myopathy community member’s personal experience with GNE Myopathy. Participants will include patients, scientists, caregivers and family members, all sharing the triumphs and sometimes tribulations of life with this rare disease in order to provide potentially helpful and supportive information for anyone whose life is touched by GNE Myopathy. About NDF: Our mission is to enhance the quality of the lives of people living with GNE Myopathy through advocacy, education, outreach, and funding

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NDF Talks with: GNE Myopathy Patient, Maya

NDF Talks with: GNE Myopathy Patient, Maya