Rare Disease Connection

Neurofibromatosis


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Hear from the experts in our conversations on a rare genetic disease: Neurofibromatosis. We cover Neurofibromatosis diagnosis, new treatment options, and how to connect with the Neurofibromatosis community.

Experts in this episode include:

*Robert J. Hopkin, MD, an associate professor of clinical pediatrics at Cincinnati Children's Hospital Medical Center, in the University of Cincinnati College of Medicine.

*Dr. Bruce Korf, MD, PhD, a medical geneticist, director of the Heflin Center for Human Genetics and chairman of the Department of Genetics at the University of Alabama at Birmingham.

*Emily Sites, LGC, a genetic counselor with a specialty focus in Neurofibromatosis, and coordinator of the Neurofibromatosis Clinic at at Nationwide Children's Hospital in Columbus, OH.

*Annette Bakker, PhD, President of the Children's Tumor Foundation and Board Member at NYBIO.

More resources and information for you: raredisease.com/nf

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Rare Disease ConnectionBy Aspect Health Inc