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Not Thinking About Migraine 24/7: A Conversation with Susan McManus
This week on Talking Head Pain, Joe is joined by Susan McManus, a migraine patient and advocate who was diagnosed 20 years ago. Describing herself as a “highly functioning migraineur” when her kids were still at school, Susan’s life was turned upside down after her condition became chronic.
Join Joe and Susan as they discuss how she navigated the shift to chronic migraine, her advocacy journey, her involvement with Headache on the Hill, and what she’s learned in trying to remain active while surrounding herself with a great team of doctors.
Among the highlights in this episode:
01:13: Joe and Susan McManus kick off the episode by each sharing an analogy about how fatigue feels
02:07: Susan shares about getting diagnosed 20 years ago and how she was able to manage her condition back then while staying busy
02:54: Joe asks Susan how her family reacted as her condition shifted from episodic to chronic
04:18: Susan discusses her advocacy journey and what led her to participate in her first Headache on the Hill in 2020
05:19: Joe shares he was recently a speaker at the Migraine World Summit. You can watch his interview via the link below:
https://migraineworldsummit.com/talk/lgtbq-migraine-care-disparities/
06:13: Susan shares why she doesn’t want to think about her migraine all the time and how she is making it a point to remain active
07:25: “I'm just going to pretend I don't have migraine, and I'm going to try to get out of the house and do something every day,” says Susan
08:58: Susan discusses how she’s tried to push through her symptoms and the reality of living with chronic migraine as well as the impact on her personal and professional life
11:27: “I've created a team of doctors, and they listened to me... So that's so important because I think a lot of doctors don't listen to the patient. And that's exhausting being your own advocate,” says Susan
Contact Our Host:
Joe Coe, Director, Therapeutic Area Growth and Integration at GHLF: [email protected]
We want to hear what you think. Send your comments, or a video or audio clip of yourself, to [email protected].
Catch up on all our episodes on our website or on your favorite podcast channel.
See omnystudio.com/listener for privacy information.
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By Global Healthy Living Foundation
4.8
5454 ratings
This week on Talking Head Pain, Joe is joined by Susan McManus, a migraine patient and advocate who was diagnosed 20 years ago. Describing herself as a “highly functioning migraineur” when her kids were still at school, Susan’s life was turned upside down after her condition became chronic.
Join Joe and Susan as they discuss how she navigated the shift to chronic migraine, her advocacy journey, her involvement with Headache on the Hill, and what she’s learned in trying to remain active while surrounding herself with a great team of doctors.
Among the highlights in this episode:
01:13: Joe and Susan McManus kick off the episode by each sharing an analogy about how fatigue feels
02:07: Susan shares about getting diagnosed 20 years ago and how she was able to manage her condition back then while staying busy
02:54: Joe asks Susan how her family reacted as her condition shifted from episodic to chronic
04:18: Susan discusses her advocacy journey and what led her to participate in her first Headache on the Hill in 2020
05:19: Joe shares he was recently a speaker at the Migraine World Summit. You can watch his interview via the link below:
https://migraineworldsummit.com/talk/lgtbq-migraine-care-disparities/
06:13: Susan shares why she doesn’t want to think about her migraine all the time and how she is making it a point to remain active
07:25: “I'm just going to pretend I don't have migraine, and I'm going to try to get out of the house and do something every day,” says Susan
08:58: Susan discusses how she’s tried to push through her symptoms and the reality of living with chronic migraine as well as the impact on her personal and professional life
11:27: “I've created a team of doctors, and they listened to me... So that's so important because I think a lot of doctors don't listen to the patient. And that's exhausting being your own advocate,” says Susan
Contact Our Host:
Joe Coe, Director, Therapeutic Area Growth and Integration at GHLF: [email protected]
We want to hear what you think. Send your comments, or a video or audio clip of yourself, to [email protected].
Catch up on all our episodes on our website or on your favorite podcast channel.
See omnystudio.com/listener for privacy information.