Rare Connection

Nutrition Equity Episode 8: Short Bowel Syndrome


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In this episode I talk with Andrew Jablowski Founder of the Short Bowel Syndrome foundation inc.  Andrew is a patient advisor and physician advisor for NAIA Pharmacuticals formerly Shire pharmacuticals.  Andrew will talk about his life with Short Bowel Syndrome, his job as a physician and patient advisor, and his foundation.  You can learn more at https://shortbowelfoundation.org/  You can learn about the Medical Nutrition Equity Act at nutritionequity.org.

Chapter Markers

00:00 Intro
03:15 What is Short Bowel Syndrome?
05:13 Andrew's diagnosis story
07:42 Inspiration for Short Bowel Syndrome inc?
10:55 Primary objectives of the Short Bowel Syndrome Inc
11:37 How SBS affects Andrew's Life
13:15 Medical formula?
16:51 How the MNEA can help Short Bowel Syndrome patients
19:01 Why the MNEA is essential to Short Bowel Syndrome patients
20:07 Andrew's role as a physician advisor
23:19 patient success stories
25:01 How you can help
27:04 hopes for the future
28:29 Research trials
28:47 Conclusion

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Rare ConnectionBy Joanna