Our Parkinson's Life

Episode 25. Barry & Jakkie head out on a brand-new road trip, this time to explore the ancient Ridings of Yorkshire (which truly is a lot more exciting than it sounds!).

00:16 Part 1: Of Luddites and Locals

14:50 Part 2: Break for the Border

21:40 Part 3: Up the Finger and Down to the Sea

Of course, for our intrepid duo, there are plenty of mishaps, near disasters and laughter along the way.

Episode 24. A very personal exploration of Barry’s battle with anxiety and how it manifests itself.

In other news, the car is packed for a brand-new road trip. Look out, Yorkshire!

Episode 23. In another hard-hitting and, at times, uncomfortable episode, Jakkie holds nothing back in describing the challenges carers face on a daily basis.

Episode 22. Jakkie, with her head in her hands, shares how Barry inexplicably turned off his Produodopa pump for 18 hours, resulting in midnight drama and chaos. With order restored, they explore the importance of planning ahead and future-proofing.

Episode 21. Jakkie shares her personal experience in applying for the range of benefits fhat could be available after diagnosis, while they both look back at Barrry's 70th birthday celebrations.

Barry and Jakkie will be taking on the panel for the upcoming Parkinsons UK Newly Diagnosed Webinar on Wednesday 16th September (UK).

Newly Diagnosed Webinars on Parkinsons UK

Register for the webinar here

Episode 20. Following on from our last episode, Jakkie presents some thoughts for carers and other loved ones on coping with dementia, then she and Barry explore the challenges of progressive PD on holidays and event planning.

Meanwhile, the pair feel fantastic as they learn this episode's title is a finalist for this year's Annual Alliteration Awards.

Episode 19. In a personal and emotive episode, Jakkie explores how the onset of dementia in someone close has such a devastating impact on others, and Barry recounts how making the wrong decision for the wrong reasons resulted in a thoroughly miserable day.

Episode 18. Receiving a Parkinson's diagnosis is a life-changing moment. The days and weeks that follow can be extremely worrying. If still employed, one question at the front of our minds will be, 'When should I tell the boss?

Barry & Jakkie welcome their first podcast guest, Steve Davis, an experienced HR professional, to guide us through the support that should be available, employee legal rights, a range of options to manage a likely steady decline, and rights and responsibilities at the point the employee and organisation part company.

Episode 17. Barry and Jakkie, back from their holiday by the sea, reflect on how understanding our limitations means we can still have a fabulous time.
Barry shares a painful reminder of the necessity to take medication carefully, and how an unfortunate and painful visit was an excellent reminder of the need to make more people aware of Parkinson's.
We end with an innovative idea which really would take us back to our school days.

Episode 16. Join Barry & Jakkie on their holidays in the beautiful seaside town of Aberdovey.

They remember chaotic but fun holidays when their children were young, crabbing from the jetty, productive visits to a local market, and how a glass of wine provided a coping mechanism amongst the chaos.

It's not all plain sailing. We explore the reasons behind, and solutions for, Barry's occasional bouts of anxiety.

Give it a listen – you can almost smell and taste the sea air.