On this episode of Catalyst Convos, host Amy Grover is joined by Laura Romero, a university student living with epilepsy, and Desiree Taliancich, a nurse practitioner diagnosed with Lambert-Eaton myasthenic syndrome (LEMS). Together, they dive deep into the unique healthcare challenges in the Hispanic community and share invaluable advice on self-advocacy, persistence, and the significance of early medical intervention. Laura, who manages her condition with transparency and community engagement, shares her journey of advocating for her health and seeking accommodations in an academic environment. Desiree provides a vivid account of her diagnostic journey, highlighting the difficulties Hispanic patients face in accessing specialized healthcare services, particularly in rural southern Texas. Both guests emphasize the importance of persistence, trusting one’s instincts, and building supportive relationships with healthcare providers. Press play and learn about the unique challenges faced by the Hispanic community regarding rare diseases and epilepsy.

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