In this episode of the Talking Blood Cancer podcast, host Kate Arkadieff speaks with Cathy Koning about her experience living with acute myeloid leukaemia (AML). Cathy, now 72, was diagnosed 14 years ago and shares insights into her diagnosis, treatment journey, and the ongoing impact of life after stem cell transplant.

Cathy reflects on the early symptoms that led to her diagnosis, such as unexplained bruising and extreme tiredness. She describes the challenges around being heard by her healthcare providers and highlights the importance of persistence when seeking answers about unusual health changes. 

They talked about the realities of treatment, including chemotherapy, intensive care, and the impact of sepsis. Cathy also discusses her experiences managing needle phobia, the support she found in online communities, and the transition from being a patient to providing care for her husband through his own cancer diagnoses. She speaks openly about life with chronic graft versus host disease, and the value of building resilience rather than framing herself as “brave”. Throughout, Cathy emphasises the importance of listening to your body, advocating for yourself, and making the most of each day.

Cathy’s perspective offers reassurance to others facing similar diagnoses, highlighting the importance of community, adaptability, and finding joy and purpose after blood cancer. For patients and carers alike, her story provides practical suggestions and emotional support for managing the many facets of living with and beyond blood cancer.

For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au

The Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network