What does it mean to be a patient advocate and to ‘own your worth’?

 

When Terri Coutee received her second diagnosis for breast cancer she was mistakenly diagnosed with incurable metastatic disease. This prompted her to blog about her experience and advocate for others.

 

Luan and Terri talk about how Terri went on to set up not-for-profit DIEPC Foundation, and create a 24/7 library of educational resources to help those affected by breast cancer make an informed decision about reconstruction after a mastectomy.

 

Be sure to listen out for the poem Terri melodiously reads that so beautifully sums up the work of patient advocates #WorkIsLoveMadeVisible

 

Luan and Terri also talk about:

• The role of a patient advocate
• Keeping calm when things go wrong!
• Importance of open dialogue
• How we can all learn from each other
• Responsibilities of patient advocacy
• Improving patient outcomes
• Tips for navigating conferences as an advocate

 

Links for this pod:

• DIEPC Foundation website
• DIEPC Journey private Facebook group
• DIEPC Instagram

 

Where you can find Luan:

• Instagram
• Website
• LinkedIn

 

If you’ve found any of the content upsetting, please reach out and get help. Breast Cancer Network Australia has a free confidential helpline – 1800 500 258. Beyond Blue has a range of free resources online, or you can call them 24/7 on 1300 224 636.

 

The information in this podcast does not constitute medical advice. For personalised medical advice you should seek a consult with a FRACS qualified surgeon.

 

Post-production ‘shine’ by Paddy @ Goosing Sounds Ltd (UK)

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