Rare Care Chronicles

Parent Roundtable


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Rare Care Chronicles: Parent Roundtable brings together TANGO2 parents David Longman, Amanda Hull, and Amy Clay for an honest conversation about the TANGO2 diagnosis journey. Hosted by T2RF Executive Director Ann Geffen, this episode explores early symptoms, the long search for answers, the impact of receiving a diagnosis, and how families find support, hope, and connection through the TANGO2 community.

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Rare Care ChroniclesBy TANGO2 Research Foundation