Parenthood doesn’t always unfold the way we imagine.

In this Rare Disease Day special, Sarah shares her family’s lived experience of parenting a child with a rare disease — from diagnosis and grief to resilience and connection. This conversation explores how labels can become tools for finding support, not reasons for hiding, and how A Different Story was created as a community for parents in the Netherlands to be seen, heard, and held.

This episode may feel heavy for some — and deeply affirming for others. It is shared with care, dignity, and the belief that no one should navigate this journey alone.