DEARG: Delivering Endometriosis and Adenomyosis Resources and Guidance

Part 1 Kathleen King Endometriosis and Adenomyosis Advocate, with Johanna Huber interviewing.


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"DEARG - Putting Kathleen King in the Hot Seat" with Johanna Huber:

Kathleen’s Personal Journey:

Diagnosed with endometriosis after a nine-year delay, facing dismissal from doctors and misinformation.

Frustrated by the lack of awareness and support, Kathleen became a dedicated advocate.


Current Advocacy Work:

  • Runs the DEARG podcast and leads various initiatives, including:
  • The Irish EndoMarch
  • MISE, an educational project on menstrual and endometriosis issues in schools
  • Research collaborations
  • Patient, corporate and media support
  • Advisor to OnaWave (CailinAI)
  • Advisor to TELL Health
  • Advisor to JOII
  • ESHRE Endometriosis Guidelines

  • Challenges and Importance:

    Endometriosis advocacy faces funding difficulties, burnout risks, and the emotional toll of supporting patients.

    Despite challenges, Kathleen emphasises the importance of accurate information and individualisation of care.

    She advocates against misinformation and low-quality research, highlighting the need for critical evaluation.


    Key Qualities for Advocacy:

    Open-mindedness, active listening, and critical thinking skills

    Passion and commitment to empowering others


    Additional Points:

    Kathleen underlines the crucial role of:

    Accurate information for endometriosis patients

    Standardised care and specialist access

    Open communication, education, and support for women's health

    Recognising and addressing abnormalities in menstrual health


    Overall:

    Kathleen King's personal experience and dedicated advocacy work highlight the challenges and importance of improving endometriosis awareness, diagnosis, and treatment. Her efforts contribute to empowering individuals, building stronger communities, and driving positive change.


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    DEARG: Delivering Endometriosis and Adenomyosis Resources and GuidanceBy Kathleen King