On today’s episode of Patient Podcasts, we are joined with co-founder and CEO of Duchenne UK, Emily Reuben. After her eldest son was diagnosed with Duchenne muscular dystrophy (DMD), she established the Duchenne Children’s Trust. The charity joined forces with Joining Jack and is now Duchenne UK. Since 2012 they have spent more than £17 million on accelerating the search for treatments and a cure for DMD, and have set up groundbreaking and award-winning collaborations, turning Duchenne UK into the UK’s largest funder of DMD research. Emily is a recognized advocate on behalf of DMD patients around the world in meetings at the FDA, EMA, MHRA, NICE and SMC. She was praised in the House of Commons for the charity’s work by the Minister for Life Sciences, and in 2017 Emily and her co-founder Alex Johnson were awarded a Points of Light award by the Prime Minister for their passionate work.