PodcastDX

This week on PodcastDX, we're talking about L.A.T.E., which stands for Limbic-predominant Age-related TDP-43 Encephalopathy. It's a type of dementia that many people have never heard of, but it's common, especially in adults over 80.

L.A.T.E. can cause memory loss that looks a lot like Alzheimer's disease. Because of that, it's often missed or mistaken for Alzheimer's. In this episode we cover:

• What L.A.T.E. is and how it was identified

• How it differs from Alzheimer's, and why the difference matters

• Why many people have both conditions at the same time

• What current research is showing

• Questions to ask your doctor

• Support and resources for caregivers and families

If you or someone you love has been told "it's probably Alzheimer's," this episode is worth a listen.

This week on PodcastDX, we're talking about L.A.T.E., which stands for Limbic-predominant Age-related TDP-43 Encephalopathy. It's a type of dementia that many people have never heard of, but it's common, especially in adults over 80.

L.A.T.E. can cause memory loss that looks a lot like Alzheimer's disease. Because of that, it's often missed or mistaken for Alzheimer's. In this episode we cover:

• What L.A.T.E. is and how it was identified

• How it differs from Alzheimer's, and why the difference matters

• Why many people have both conditions at the same time

• What current research is showing

• Questions to ask your doctor

• Support and resources for caregivers and families

If you or someone you love has been told "it's probably Alzheimer's," this episode is worth a listen.

Listen now wherever you get your podcasts.

Welcome to PodcastDx, the show that helps you make sense of your health. I'm Jean Marie McNamara. I'm joining you today with Lita Tomas, our Production Manager and of our co-hosts, Ron Rispoli (our third co-host) will not be with us today.

Think about the last time you had a health question. Maybe it was a new symptom, a medication side effect, or a diet everyone seems to be talking about. Did you call your doctor first? Or did you open YouTube, TikTok, or a Facebook group?

If it was your phone, you're not alone. More than half of American adults now use social media to find health information and advice at least occasionally. But fewer than one in ten say they trust most of what they see there.

So we're scrolling for answers we don't fully trust. And in a feed full of doctors, influencers, wellness coaches and people telling their own stories, it can be hard to tell good advice from bad.

That's what we're tackling today. We'll talk about where people go online with medical questions, why some advice spreads so fast, and the red flags that should make you stop and look twice. Most important, you'll leave with simple ways to check whether something you saw online is worth bringing to your doctor, or worth ignoring.

Whether you're a patient, a caregiver, or just someone who's ever gotten health advice from a stranger online, this episode is for you.

Let's get started.

Fatigue is more than feeling tired—for many people living with Ehlers-Danlos syndromes (EDS), it can mean overwhelming physical and mental exhaustion that affects even the simplest daily tasks. Chronic pain, disrupted sleep, and difficulties regulating heart rate and blood pressure can all contribute, making fatigue a complex and often misunderstood part of life with EDS. In this episode of PodcastDX, we take a closer look at fatigue in EDS, why "just get more rest" may miss the bigger picture, and how greater understanding, individualized care, and compassionate support can help people navigate daily life.

This week we will discuss product recalls and your health. According to WEBMD: A product safety recall happens when a consumer watch group or a manufacturer finds problems with a product.

Lots of items can be recalled.

Some products that are commonly recalled include:

• Food products, like meat or vegetables

• Medication and medical devices

• Children's products, like safety seats

• Car parts

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If an item is recalled, you may have to throw it away, return it, or exchange it for a similar or newer product.

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Did you know that in the United States, six federal agencies have now joined forces to provide better service in alerting the populace of unsafe, hazardous or defective products. That website is simply Recalls.gov! At least they made that part very easy to remember! I'll put links on our website for more detailed information.

Our guest today is a physician, author and activist. The topic this week is "Stage 4 Cancer as an ER Doc".

Dr. James Maskalyk practices emergency medicine at St. Michael's, Toronto's inner-city trauma hospital, is Associate Professor and award-winning teacher and academic at the University of Toronto. He has written two books so far, the international bestseller "Six Months in Sudan" and more recently, "Life on the Ground Floor", winner of Canada's largest non-fiction literary prize. You can find more of his writing here: https://jamesmaskalyk.substack.com

​He was editor of both the Canadian Medical Association Journal and Open Medicine and founding, strategic director of a program that supports partners at Addis Ababa University to grow emergency medicine systems. He is a member of Medecins Sans Frontieres, for which he has worked as journalist and physician. He practices and teaches mindfulness in Toronto, and is inaugural Wellness Director for the University of Toronto's Divisions of Emergency Medicine. He was voted one of the "Top 50 Most Influential Torontonians" in 2023.

You can follow him here:

www.instagram.com/doctorhealthyselff x.com/jamesmaskalyk www.facebook.com/jamesmaskalyk

This week on PodcastDX, Dr. Sanjeev Kumar joins Lita, Ron, and Jean Marie to discuss AI and robotics in medicine—from surgical robots and rehabilitation technology to hospital automation, patient safety, and the importance of keeping human judgment at the center of care.

Dr. Sanjeev Kumar was the first surgeon to perform a robotic cervical cerclage in the city of Memphis on a outpatient basis leading to discharge of the patient on the same day. This operation was called as a breakthrough by the local media as it helped local people in Memphis to achieve the dreams of having a family. Before he performed this operation in Memphis community, the patients and their family had to travel far away in other cities to get this operation done. They will go to Chicago in the North and Dallas in the south. Once Dr. Kumar started performing these surgeries in the City of Memphis, the crucial and novel treatment could be provided in the the city itself, helping the local community.

Retired U.S. Coast Guard Master Chief Petty Officer Jack Clifford joins PodcastDX to share how severe chronic angina once limited even everyday activities and left him facing the possibility of triple-bypass surgery. After researching options and advocating for a referral, Jack began Enhanced External Counterpulsation (EECP), a noninvasive outpatient therapy in which timed leg cuffs inflate and deflate in sync with the heartbeat. He describes the gradual improvement he experienced after treatment and why he has devoted more than 700 hours to EECP, written EECP: The Most Under Utilized Therapy in Medicine, and founded EECPLocator.com to help others learn about the therapy.

The episode stresses that EECP is not a cure or a replacement for individualized medical care; rather, it may be an option for selected people with chronic stable angina who continue to have symptoms despite medical treatment and are not good candidates for additional stents or bypass surgery. Jack's central message is one of informed, respectful self-advocacy: ask questions, understand the risks and benefits, and work with a qualified cardiology team to determine what is appropriate for your individual situation.

In this episode of PodcastDX, we speak with Allany Muniz, founder of Diary of an Epileptic, about the realities of living with epilepsy beyond what most people see. Allany shares how her diagnosis changed her life and led her to create a platform built on honest storytelling, awareness, and connection. Together, we explore the many ways epilepsy can affect memory, confidence, relationships, mental health, daily routines, and a person's sense of identity—not only seizures.

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This thoughtful conversation also addresses misinformation and stigma, the value of tracking symptoms and triggers, and the importance of informed, compassionate support from family, friends, and healthcare providers. Allany offers an encouraging message for people who are newly diagnosed: life may look different, but it can still be full, meaningful, and connected.

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For more information and support: Visit the CDC's epilepsy resources, the Epilepsy Foundation's seizure-first-aid materials, and the National Association of Epilepsy Centers' patient resources. You can also follow our guest, Allany Muniz, and Diary of an Epileptic on Instagram and TikTok at @DiaryofanEpileptic, and on YouTube at Diary of an Epileptic.

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​Bio: Hey, my name is Allany Muniz, a woman who happens to have epilepsy. In my 14 going on 15 years of having epilepsy, I have experienced PTSD, healing, mental health issues, paranoia, finding my confidence/voice, and isolation.

I got diagnosed in August of 2011. That particular day was typical, except for feeling excited to start my freshman year. I was ready to get rid of the nightmares I endured in middle school and saw high school as my fresh start. Honestly, I can't even tell you what he said; all I heard was seizures and epilepsy. A few days later, I had a seizure, which confirmed my epilepsy diagnosis. Of course, in my life, I've been the center of embarrassment and humiliation, so when I had 3 seizures at school, I became known as the "seizure girl."

Throughout the years, I received opportunities to speak about my story and spread awareness.

The idea of Diary of an Epileptic started in 2019 when I would have these creative... self-talk moments (now known as vivid visions/dreams). In November 2020, I fractured my ankle and thought, " Might as well, since I had nothing else to do. It was weird at first because I forgot I was still loopy from the anesthesia, but it felt... right like I was on the right path.

Memory Villages explores the promise and the questions surrounding dementia villages—care communities designed to feel more like neighborhoods than institutions. We discuss how familiar surroundings, routine, meaningful activity, and freedom of movement may support dignity and engagement, while also examining the important concerns: cost, access, staffing, evidence of benefit, safety, and ethics.

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The United States has been slower than countries such as the Netherlands and Canada to build full residential memory villages. The reasons appear to be less about lack of interest and more about how long-term care is financed, the cost of creating a village-scale setting, and the need for stronger evidence that the model improves outcomes—not just appearances.

The takeaway: a beautiful setting alone does not guarantee good care. Families should look closely at staff training, individualized support, daily activities, transparency, and how a community protects both safety and autonomy.