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In this episode I talk with Christina, Who is the host of Speaking in Spoons and a patient with Primary Sclerosing Cholangitis (PSC), Trigeminal Neuralgia and Hemiplegic Migraines.  

The aim of this podcast is to connect those with similar conditions, educate medical professionals, and hopefully help find treatments and clinical trials.

Chapter Markers
0:00:00 Intro
0:02:10 Zebra analagy
0:02:19 Why I switched from Nutrition Equity to Rare Connection
0:04:30 How Primary Sclerosing Congelitis diagnosis
0:13:30 Clinical trial for Primary Sclerosing Congelitis
0:14:46 Balancing uncertainty of multiple rare conditions with maintaining hope for future treatments
0:19:04 Making sure PSC recieves attention
0:23:33 Trigeminal Neuralgia Diagnosis
0:29:39 Trogemonal Neuralgia triggers
0:30:39 Navigating life with intense pain
0:33:26 Treatments for Trigminal Neuralgia
0:35:00 Educating others about Trigeminal Neuralgia
0:39:51 What a hemiplegic Migraine feels like
0:51:04 Hw to tell the difference between a regular migraine and a hemiplegic migraine
0:53:44 How Hemiplegic Migraines effect Christins=a's ability to participate in every day activities
0:58:31 Advice for Hemiplegic Migraine patients
1:01:47 Conclusion

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