Sign up to save your podcastsEmail addressPasswordRegisterOrContinue with GoogleAlready have an account? Log in here.
Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.... more
FAQs about Rare Care Podcast:How many episodes does Rare Care Podcast have?The podcast currently has 223 episodes available.
February 24, 2026213: An Interview With Andrea Wilson-Woods, Founder of Blue Faery, a Nonprofit That Advocates for Patients With Hepatocellular CarcinomaLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Andrea Wilson-Woods, founder of Blue Faery: The Adrienne Wilson Liver Cancer Association—a nonprofit that advocates for patients with hepatocellular carcinoma....more14minPlay
February 17, 2026212: An Interview With Dr. Michael Schilsky of the Yale School of Medicine, and an Expert on Wilson DiseaseLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Michael Shilsky, MD, of the Yale School of Medicine, on potential therapies for Wilson disease....more11minPlay
February 11, 2026211: An Interview With Yen Chen, PhD, on Brain Fog Among People With SclerodermaLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Yen Chen, PhD, of the University of Michigan, on the subject of cognitive dysfunction or "brain fog" among people with scleroderma....more13minPlay
February 02, 2026210: An Interview With Dr. Aleksander Krag on Diagnosing and Treating Alpha-1 DiseaseLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Danish hepatologist Aleksander Krag, MD, PhD, on the diagnosis and treatment of alpha-1 antitrypsin deficiency (AATD)....more13minPlay
January 28, 2026209: An Interview With Vesna Aleksovska, a Rare Disease Patient Advocate in North MacedoniaLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Vesna Aleksovska, chair of the nonprofit organization Life With Challenges. Aleksovska, who has Gaucher disease, advocates for all rare disease patients in North Macedonia, a former Yugoslav republic....more20minPlay
January 21, 2026208: An Interview With Wesley Michael, Founder of Rare Patient VoiceLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Wesley Michael, founder of Rare Patient Voice. Since 2013, RPV has offered patients and caregivers opportunities to share their input with companies developing products to improve lives....more8minPlay
January 12, 2026207: An Interview With Katharine Provencher, Director of Patient Advocacy at IgG4Ward!Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Katharine Provencher, director of patient advocacy at IgG4Ward!, a nonprofit that advocates for patients and caregivers affected by IgG4-RD....more12minPlay
January 05, 2026206: An Interview With Cecilia Dueñas, PsyD, on Discrimination and Stigma She Encountered Before Getting Diagnosed With PBCLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Cecilia Dueñas, PsyD, on the PBC Research Foundation, and the discrimination and stigma she faced for years before getting diagnosed with the disease....more13minPlay
December 30, 2025205: An Interview With Sickle Cell Disease Patient Advocate Golie-Lorenzo GreenLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Golie-Lorenzo Green, whose lifelong battle with sickle cell disease led him to advocate for others with the debilitating illness....more14minPlay
December 22, 2025204: An Interview With Jana Monaco, a NORD Patient Ambassador From VirginiaLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Jana Monaco, a NORD patient ambassador from Virginia who's made nationwide newborn screening her life's mission....more15minPlay
FAQs about Rare Care Podcast:How many episodes does Rare Care Podcast have?The podcast currently has 223 episodes available.