Off Stage

Rare Disease and a Faithful God


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When Brittany's daughter Ansel was born with Galactosemia—a rare and often deadly genetic disorder—her world was turned upside down. In this deeply personal episode, Greg and Brittany walk through a story of confusion, suffering, advocacy, and faith. From watching their newborn deteriorate in the NICU to leading a national fundraising effort, enrolling in experimental drug trials, and grappling with FDA roadblocks, Brittany shares how God’s faithfulness showed up in the darkest places. This is not just a story about rare disease—it’s about hope when healing doesn’t come quickly, faith refined through fire, and what it means to trust God with the ones you love most.

Watch this episode on Youtube

Brittany has provided verses that she's clung to through this season. 

Brittany referenced Corrie Ten Boom and Elisabeth Elliot and recommends both The Hiding Place by Ten Boom and Suffering It Not For Nothing by Elliot. 

 

For more information on this podcast, visit fellowshipknox.org/podcasts

 

You can also e-mail questions or topic ideas to [email protected]   

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Off StageBy Fellowship Church

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