In this episode of our bonus Rare on Air Stories series, Julien Poulain reads the story of Ahmed, a Pakistani professional and advocate whose long path to a diagnosis of Primary Ciliary Dyskinesia (PCD) reshaped his life and perspective.

After decades of unexplained respiratory problems and repeated misdiagnoses, Ahmed finally received clarity at age 34. He reflects on the relief of understanding his condition, the challenges of navigating a little-known rare disease, and the resilience built along the way.

Now living in Europe and drawing on his experiences across multiple regions, Ahmed channels his journey into advocacy, encouraging awareness, community support, and earlier diagnosis for others living with PCD.