Rare on Air

Rare Disease Day: Dan's story


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Join us on our 5th Rare On Air Stories for an incredible journey with Dan, a US Navy veteran and a 10-year hereditary colon cancer warrior.

Facing a rare gene mutation impacting less than 0.03% of the global population, Dan shares his resilient spirit and positive mindset throughout his battle. From a life-saving total-proctocolectomy surgery to meeting Dr. Henry T. Lynch, the pioneer of hereditary colon cancer research, Dan's story is one of faith, adaptation, and purpose.

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Rare on AirBy EURORDIS