This episode of our bonus podcast series marking Rare Disease Day features the story of David, who is living with Stiff Person Syndrome. It explores David’s experience of having no definitive diagnosis – the feelings of uncertainty, frustration and depression this comes with as well as the physical effects of a rare disease.

However, David’s story inspires a message of perseverance and hope that he likens to climbing a mountain. Listen in to hear about how this disability changed David’s life and attitude.

Visit ⁠⁠rarediseaseday.org⁠⁠ to share your story or get involved. Rare Disease Day is on 28 February 2025.