The Talking Point

Rare Disease Day


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Tomorrow (Thursday the 29th) is Rare Disease Day which is used to raise awareness for rare diseases and to improve access to treatment and medical representation for individuals with rare diseases and their families. According to the medical fraternity, there are 7,000 identified rare diseases to date, with some widely recognized by name, such as cystic fibrosis, hemophilia and sickle cell, while others are less known, such as cat eye syndrome. In a country like ours, this must be very heart-breaking as we are an unequal society, what happens then if you are poor and your child need special treatment knowing how expensive it can get? 

Guest: Bada Pharasi - CEO of the Innovative Pharmaceutical Association of South Africa

Guest: Mahlatse Mashala - Living with Neurofibromatosis

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The Talking PointBy SAfm