Episode 7 of Rare on Air Stories is here!
Meet Jay, an individual living with Congenital Central Hypoventilation Syndrome (CCHS), a rare invisible disability diagnosed since birth.
In this episode, Jay pursues his passions despite the challenges posed by CCHS. Hear how he advocates for disability rights, spreads awareness, and embraces life's joys.

Episode 7 of Rare on Air Stories is here! Meet Jay, an individual living with Congenital Central Hypoventilation Syndrome (CCHS), a rare invisible disability diagnosed since birth. In this episode, Jay pursues his passions despite the challenges posed by CCHS. Hear how he advocates for disability rights, spreads awareness, and embraces life's joys.

Episode 7 of Rare on Air Stories is here!
Meet Jay, an individual living with Congenital Central Hypoventilation Syndrome (CCHS), a rare invisible disability diagnosed since birth.
In this episode, Jay pursues his passions despite the challenges posed by CCHS. Hear how he advocates for disability rights, spreads awareness, and embraces life's joys.&nbsp;

Rare Disease Day: Jay's story

A EURORDIS-Rare Diseases Europe podcast on the experiences, challenges and successes of people living with rare diseases. Julien Poulain, Communications Manager at EURORDIS, meets with people who share their unique experiences of living with a rare disease, those who advocate for them, and experts on rare disease policy. Email the EURORDIS Rare on Air team at: rareonair@eurordis.org.

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Rare Disease Day: Jay's story

Rare Disease Day: Jay's story