<p>Listen to our final episode of Rare On Air Stories this year, featuring Leif and his journey with GNE Myopathy. From seeking answers online to receiving a diagnosis in Switzerland, Leif shares his experiences with resilience and adaptation in navigating life with a rare condition.

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Listen to our final episode of Rare On Air Stories this year, featuring Leif and his journey with GNE Myopathy. From seeking answers online to receiving a diagnosis in Switzerland, Leif shares his experiences with resilience and adaptation in navigating life with a rare condition.

Rare Disease Day: Leif's story

A EURORDIS-Rare Diseases Europe podcast on the experiences, challenges and successes of people living with rare diseases. Julien Poulain, Communications Manager at EURORDIS, meets with people who share their unique experiences of living with a rare disease, those who advocate for them, and experts on rare disease policy. Email the EURORDIS Rare on Air team at: rareonair@eurordis.org.

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Rare Disease Day: Leif's story

Rare Disease Day: Leif's story