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Rare Disease Day Series: Australian Pompe Association
In recognition of Rare Disease Day, our staff member Emily had the pleasure of catching up with Renee Brown, Secretary for the Australian Pompe Association. Renee speaks about Pompe, its daily challenges, and the importance of raising awareness of rare conditions.
To learn more about Pompe and support available, contact Renee at [email protected].
To find out about peer Support Groups in WA, contact ConnectGroups at [email protected].
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By Alike WAIn recognition of Rare Disease Day, our staff member Emily had the pleasure of catching up with Renee Brown, Secretary for the Australian Pompe Association. Renee speaks about Pompe, its daily challenges, and the importance of raising awareness of rare conditions.
To learn more about Pompe and support available, contact Renee at [email protected].
To find out about peer Support Groups in WA, contact ConnectGroups at [email protected].