As part of our Rare Disease Day podcast series, Emily chats with Lisa Rynne, the co-founder of Sotos Syndrome Association, about the rare condition, her experience as a mother of a child with Sotos, and the importance of raising awareness about rare, genetic, and undiagnosed conditions.

To learn more about Sotos Syndrome Association Inc, contact [email protected].

To find out about peer Support Groups in WA, contact ConnectGroups at [email protected].

Music: https://www.purple-planet.com