Rare Disease?  Meet Shannon a superstar human! Shannon was diagnosed with a rare vascular compression syndrome known as Median Arcuate Ligament Syndrom. MALS causes severe pain after eating, drinking, exercising, and the inability to take deep breaths. Shannon shares her wisdom on how to suffer well and how to find the light in the darkness! Sponsor: Are you constantly looking for unique, one-of-a-kind gifts for you and your loved ones? If so, check out krboards.com! They recycle broken skateboards into personalized rings, pens, bottle openers, and more. Every skateboard recycled by KR Boards is comprised of 7 colorful layers that are repurposed into beautiful custom items. Use code LEIASKIDS to get free shipping plus 10% of the order will be donated to Leia's Kids.    Website: www.leiaskids.org www.malsfoundation.org   Instagram: @Leias_kids @leiatherese @shannon_735Podcast Production Services by NCC Audio