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There are~ 30 million people in Europe alone living with a rare condition, of which 75% have neurological symptoms. While significant progress has been made to address needs of these patients, key challenges remain including the scarcity of the expertise and fragmentation of research efforts that translate into delayed diagnosis, few disease modifying therapies, and difficulty in accessing adequate care.
In this episode of Axiom Catalyst, we invited Frédéric Destrebecq, the Executive Director of the European Brain Foundation and European Brain Council to discuss how coordinated efforts between patient organisations, research and clinical networks, drug innovators and policy makers, can tackle these challenges and reduce the high burden posed by rare neurological disorders in Europe and beyond.
There are~ 30 million people in Europe alone living with a rare condition, of which 75% have neurological symptoms. While significant progress has been made to address needs of these patients, key challenges remain including the scarcity of the expertise and fragmentation of research efforts that translate into delayed diagnosis, few disease modifying therapies, and difficulty in accessing adequate care.
In this episode of Axiom Catalyst, we invited Frédéric Destrebecq, the Executive Director of the European Brain Foundation and European Brain Council to discuss how coordinated efforts between patient organisations, research and clinical networks, drug innovators and policy makers, can tackle these challenges and reduce the high burden posed by rare neurological disorders in Europe and beyond.