When Ellen De Meyers delivered her baby girl, she was over the moon to give her son a baby sister. But when her daughter Pia was just 3 months old, Ellen noticed that something was wrong with Pia's movement and strength.
Pia was diagnosed with SMA Type 1, which can be life-limiting. There was a medicine that could save her, but it cost over £1.5m.
And what happened next, is enough to restore anyone's faith in humanity.
This is REAL LIVES.
To join the show's Patreon, please see here:
https://patreon.com/REALtruecrimepodcast
To follow Pia's journey, here Instagram page is here:
www.instagram.com/@teampia2018
or to connect with Ellen please see here:
https://www.instagram.com/ellendm1986
Ellen wrote a book on her experiences, it is currently only available in Dutch:
https://share.google/Vw1sPTuyHt6ffjUoH
To find out more about the signs and symptoms of SMA Type 1, please see here:
https://www.nhs.uk/conditions/spinal-muscular-atrophy-sma/
'Welcome to Holland' is written by Emily Perl Kingsley and you can find out more about her work here:
https://www.emilyperlkingsley.com/welcome-to-holland
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