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Ever been told to just give up and prepare to die after a diagnosis? What if I told you that’s the standard script handed to people with dementia — and it’s completely wrong? 

Today, I’m chatting with Kate Swaffer, a powerhouse who refused to accept that narrative. She’s here to shake things up, challenge the world’s outdated views on dementia, and show us why living well with this diagnosis is not just possible, but a right.

In this episode of Don't Be Caught Dead, Kate opens up about her own journey living with young onset dementia and how she rewrote the rules on what it means to be diagnosed. From the crushing “prescribed disengagement” she was offered, to founding Dementia Alliance International to give people with dementia a real voice — Kate’s story is raw, honest, and full of fire. We also dive deep into the institutional failings, the stigma that refuses to budge, and the urgent need to flip the script on how society supports people facing this diagnosis.

Kate makes it clear that dementia absolutely doesn’t mean you’re done or that death is all that’s left. Instead, it’s about reclaiming agency, demanding disability rights, and pushing for actual change — not just fundraising buzzwords. We talk about the importance of tough conversations about death at any age, raising awareness, and what real support looks like for people with dementia and their loved ones. This convo will inspire you to face death head-on — not with fear, but with preparation

The Don’t Be Caught Dead Pub Quiz is back — now in its third year, and it’s a sellout event for a reason.

Join us on May 12 at 7pm at Hotel Lona in Frankston, as part of the South Side Festival.

Come solo and join a team, or bring your own crew — and compete for great prizes.

 Go to criticalinfo.com.au/events 

Every Tuesday at 7pm, I host Critical Chat Tuesdays —
free, online conversations where you can ask questions or just listen.

No pressure.
 No expectation.

Because this isn’t about planning for “someday” —
 it’s about being ready for whatever life throws your way.

Join anytime at criticalinfo.com.au/events

MY LOVED ONE HAS DIED, WHAT DO I DO NOW?

Our guide, ‘My Loved One Has Died, What Do I Do Now?’ provides practical steps for the hours and days after a loved one's death. Download it here.

SUPPORT SERVICES
If you're feeling overwhelmed by grief, find support through our resources and bereavement services here.

Support the show

Support the 'Don’t Be Caught Dead' podcast with a one-off or regular donation to help Critical Info, a certified social enterprise, keep creating free, high-impact conversations about death, grief and planning—every contribution fuels our mission to reduce the burden on families and build a more death-literate, compassionate community. Donate here now.

Learn more: https://criticalinfo.com.au/

Connect with Don't Be Caught Dead podcast host Catherine Ashton & Critical info on socials:
https://linktr.ee/catherine_critical_info?utm_source=linktree_profile_share<sid=c1879300-84db-4c70-9270-18d17d3ec22a

Music composer: Ania Reynolds - https://www.aniareynolds.com/