Kati's daughter Kendall is 4 and is living with Rett Syndrome. 

This was my first talk with another Rett Syndrome family for the Remarkable podcast and I knew that I was about to learn so much from the other families with the same diagnosis as we have. 

It's my joy to introduce you to their family today. 

To find out more about this episode and links to the topics we discussed, please visit teamjovie.com/podcast.

GET IN TOUCH!

Let me know what you think about the Remarkable podcast and these amazing Rett Syndrome families. 

FACEBOOK https://www.facebook.com/remarkablepodcast

INSTAGRAM https://www.instagram.com/remarkablepodcast

Thanks so much for listening, 

Tracey 

teamjovie.com

This is Part 2 of my talk with Caroline. 

I know it took alot of courage to say what Caroline has said - but we know that there are other families out there going through the same challenges and the advice and encouragement from Caroline is so powerful. 

Thank you again to Caroline for sharing your story. 

To find out more about this episode and links to the topics we discussed, please visit teamjovie.com/podcast.

GET IN TOUCH!

Let me know what you think about the Remarkable podcast and these amazing Rett Syndrome families. 

FACEBOOK https://www.facebook.com/remarkablepodcast

INSTAGRAM https://www.instagram.com/remarkablepodcast

Thanks so much for listening, 

Tracey 

teamjovie.com

Caroline and I have actually known each other for a few years but this was the time first we sat down to talk about how Rett Syndrome has effected her daughter Charlotte and how her divorce has changed their family dynamics. 

This is Part 1 of our talk - I didn't want to edit out anything as we both felt that someone in the same position as Caroline would benefit from hearing what she had to say. 

To find out more about this episode and links to the topics we discussed, please visit teamjovie.com/podcast.

GET IN TOUCH!

Let me know what you think about the Remarkable podcast and these amazing Rett Syndrome families. 

FACEBOOK https://www.facebook.com/remarkablepodcast

INSTAGRAM https://www.instagram.com/remarkablepodcast

Thanks so much for listening, 

Tracey 

teamjovie.com

Jodi's 7 year old daughter Avery has Rett Syndrome, but that was not her first diagnosis. 

After talking with many families, it was apparent that alot of us experience receiving an Autism diagnosis before we reach the correct diagnosis of Rett.

I loved hearing about how funny and fun Avery is and I loved hearing about what inspires Jodi to do more for Avery despite Rett Syndrome. 

To find out more about this episode and links to the topics we discussed, please visit teamjovie.com/podcast.

GET IN TOUCH!

Let me know what you think about the Remarkable podcast and these amazing Rett Syndrome families. 

FACEBOOK https://www.facebook.com/remarkablepodcast

INSTAGRAM https://www.instagram.com/remarkablepodcast

Thanks so much for listening, 

Tracey 

teamjovie.com

Cora's 4 year old twins Charlie and Olivia both have Rett Syndrome. 

Cora keeps an amazing account of their Rett Syndrome journey on their Instagram and it was great to sit down and have a talk about how Rett effects both girls. We also talked a bit about mental health and mindset, and how the girls are with their new baby sister Madeline. 

To find out more about this episode and links to the topics we discussed, please visit teamjovie.com/podcast.

GET IN TOUCH!

Let me know what you think about the Remarkable podcast and these amazing Rett Syndrome families. 

FACEBOOK https://www.facebook.com/remarkablepodcast

INSTAGRAM https://www.instagram.com/remarkablepodcast

Thanks so much for listening, 

Tracey 

teamjovie.com

Jo's Rett Syndrome story is a little different to what we're typically used to hearing - her daughter Megan is currently 15 and wasn't diagnosed until she was 12, just 3 years ago. 

We had a great talk about how a later diagnosis of Rett Syndrome has effected them, and how Megan is doing today. 

To find out more about this episode and links to the topics we discussed, please visit teamjovie.com/podcast.

GET IN TOUCH!

Let me know what you think about the Remarkable podcast and these amazing Rett Syndrome families. 

FACEBOOK https://www.facebook.com/remarkablepodcast

INSTAGRAM https://www.instagram.com/remarkablepodcast

Thanks so much for listening, 

Tracey 

teamjovie.com

Justine's 2 year old son William has Rett Syndrome - yes boys can have Rett Syndrome too! 

It was such a great opportunity to sit down with Justine and talk about her William, how Rett Syndrome has effected him and how they have dealt with getting such a rare diagnosis. 

To find out more about this episode and links to the topics we discussed, please visit teamjovie.com/podcast.

GET IN TOUCH!

Let me know what you think about the Remarkable podcast and these amazing Rett Syndrome families. 

FACEBOOK https://www.facebook.com/remarkablepodcast

INSTAGRAM https://www.instagram.com/remarkablepodcast

Thanks so much for listening, 

Tracey 

teamjovie.com

Part 2 of my chat with Mel for the Remarkable podcast. 

Again, we had such a great time chatting about everything they've experienced with Rett Syndrome. I didn't know much about clinical trials for Rett Syndrome beforehand, so I'm so glad to have spent the time with Mel and soak in the knowledge she has. 

Please remember to check out her blog for more info about their lives with Rett, and check out some of the links below if you're interested in the clinical trials available where you are. 

To find out more about this episode and links to the topics we discussed, please visit teamjovie.com/podcast.

GET IN TOUCH!

Let me know what you think about the Remarkable podcast and these amazing Rett Syndrome families. 

FACEBOOK https://www.facebook.com/remarkablepodcast

INSTAGRAM https://www.instagram.com/remarkablepodcast

Thanks so much for listening, 

Tracey 

teamjovie.com

Mel's daughter Katelin is 26 and living with Rett Syndrome. 

It was such an honour to sit down with Mel not only once, but twice, for the podcast. I openly admit that I have alot of learning to do, so talking with Mel was such a great learning experience for me. 

We talk about a range of things - from her writing, to Atypical Rett Syndrome, to the clinical trials they were involved in. Mel's blog Trail to a Texas Trial is an amazing recount of everything they've experienced with Rett Syndrome and with the Trofinetide trial. 

This is Part 1 of our chat! 

To find out more about this episode and links to the topics we discussed, please visit teamjovie.com/podcast.

GET IN TOUCH!

Let me know what you think about the Remarkable podcast and these amazing Rett Syndrome families. 

FACEBOOK https://www.facebook.com/remarkablepodcast

INSTAGRAM https://www.instagram.com/remarkablepodcast

Thanks so much for listening, 

Tracey 

teamjovie.com

Dana is the wonderful mum to 6 year old Maika, who is living with Rett Syndrome. In this episode, we talked about what it's been like since their diagnosis, how it's effected her twin brother Marley and having another baby after a Rett Syndrome diagnosis. 

To find out more about this episode and links to the topics we discussed, please visit http://teamjovie.com/podcast.

GET IN TOUCH!

Let me know what you think about the Remarkable podcast and these amazing Rett Syndrome families. 

FACEBOOK https://www.facebook.com/remarkablepodcast

INSTAGRAM https://www.instagram.com/remarkablepodcast

Thanks so much for listening, 

Tracey 

teamjovie.com