On this episode, we’re joined by Rohini Deivasigamani, a 25-year-old from New Jersey who was diagnosed with Ewing sarcoma at 14 years old. Now, a decade later, she reflects on her journey from teenage cancer patient to young adult survivor and shares how time and perspective have shaped the way she processes that experience.

Rohini shares not only about her own diagnosis and treatment, but also about her father’s cancer diagnosis, which came shortly after hers. She discusses how her understanding of what they both endured has evolved over the years and the lasting impact those experiences have had on her life.

In recognition of National Cancer Survivor Month this June, we’re honored to share Rohini’s story with our community. Ten years after completing active treatment, she offers a real look at what survivorship means, the challenges and growth that come with it, and how she continues to navigate life beyond treatment.

Rohini’s optimism is magnetic, and her honest reflections are sure to resonate with many in the sarcoma community.

Thank you so much, Rohini, for joining us and for sharing your story so openly.

Let’s dive in.

Resources:

Ewing Sarcoma Subtype Page: https://curesarcoma.org/sarcoma-subtypes/ewing-sarcoma/

Discussion Guide: https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/

Sarcoma Stories FB Group: https://www.facebook.com/groups/512452631597704

Connect with Rohini:

Rohini's Ted Talk: https://www.youtube.com/watch?v=-nvcWaMXM2s

Instagram: https://www.instagram.com/rohinideiv

TikTok: https://www.tiktok.com/@rotalks

LinkedIn: https://www.linkedin.com/in/rohini-deivasigamani-758712207/