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Imagine being the youngest person ever diagnosed with narcolepsy at just three years old. Today, we're honoured to share the extraordinary journey of Mathilda, who has spent her life battling and thriving despite this complex condition. Joined by our Marketing Manager Iris, also living with narcolepsy type 1, we dive into Mathilda's world—from her early diagnosis to the release of her mother Claire's heartfelt memoir, "Waking Mathilda."

In this deeply personal episode, Mathilda opens up about the emotional challenge of reading her own story through her mother's eyes and the resilience it takes to navigate life with narcolepsy and cataplexy. Hear firsthand how she has managed to maintain her sense of self and privacy amidst the attention brought by her unique medical journey. Whether you're familiar with narcolepsy or just learning, Mathilda's story is sure to inspire and enlighten.

From her family dynamics to her personal thoughts on privacy and public attention, Mathilda shares her unique perspective for the first time. Join us for this inspiring episode that promises to educate, move, and resonate with anyone touched by narcolepsy.

Chapter Timestamps

(03:00) - Mathilda's Early Diagnosis
(07:00) - Reading "Waking Mathilda"
(17:00) - Maintaining Privacy and Self-Identity
(21:00) - Family Dynamics
(25:00) - Public Speaking and Sharing Her Story
(30:00) - Final Thoughts

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***If you find these symptoms relatable, please seek medical advice.***

 

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

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***If you find these symptoms relatable, please seek medical advice.***