Sign up to save your podcasts
Or
Share S1E7 Henry's Narcolepsy Journey: A 13-year Battle
Share to email
Share to Facebook
Share to X
Share to email
Share to Facebook
Share to X
Or
S1E7 Henry's Narcolepsy Journey: A 13-year Battle
Leave a review!
What if a sleep study could be the key to unlocking a 13-year mystery? Join us as we sit down with Henry from Queens, New York, who shares his deeply personal journey from experiencing his first symptoms of narcolepsy type 2 in 1996 to finally receiving a diagnosis in 2009.
In this episode, Henry opens up about his trial-and-error process with medications, to experiencing the highs and lows of finding the right combination, including his experiences with Xyrem. Learn how narcolepsy impacted his work life, requiring adaptable environments and a supportive network to help him maintain a sense of normalcy and identity.
Tune in as Henry discusses practical coping mechanisms for dealing with symptoms like brain fog and hallucinations and highlights the invaluable support of community groups. This episode is a testament to the power of awareness, education, and unwavering support in overcoming the obstacles posed by narcolepsy.
Chapters:
- (00:06) - Narcolepsy Awareness
- (07:21) - Managing Narcolepsy and Work Life
- (13:31) - Challenges of trying to adopt with Narcolepsy
- (19:04) - Managing Narcolepsy
Highlights:
- (02:51 - 04:01) Journey to Narcolepsy Diagnosis (70 Seconds)
- (12:31 - 13:31) Narcolepsy and Self-Identity (60 Seconds)
- (16:32 - 17:38) Support and Understanding of Narcolepsy (66 Seconds)
- (21:57 - 24:08) Understanding and Managing Narcolepsy (131 Seconds)
- (29:16 - 30:58) The Red Button (102 Seconds)
Subscribe for more inspiring episodes, share to raise narcolepsy and idiopathic hypersomnia awareness, and join the conversation by sharing your experiences.
Follow us on our Social Media platforms for updates: https://www.instagram.com/narcolepsynavigatorspodcast/
www.linkedin.com/company/narcolepsy-navigators-podcast
Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.
Follow and support Narcolepsy Navigators:
www.napsforlife.com
Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast
***If you find these symptoms relatable, please seek medical advice.***
View all episodes
By Kerly Bwoga
5
33 ratings
Leave a review!
What if a sleep study could be the key to unlocking a 13-year mystery? Join us as we sit down with Henry from Queens, New York, who shares his deeply personal journey from experiencing his first symptoms of narcolepsy type 2 in 1996 to finally receiving a diagnosis in 2009.
In this episode, Henry opens up about his trial-and-error process with medications, to experiencing the highs and lows of finding the right combination, including his experiences with Xyrem. Learn how narcolepsy impacted his work life, requiring adaptable environments and a supportive network to help him maintain a sense of normalcy and identity.
Tune in as Henry discusses practical coping mechanisms for dealing with symptoms like brain fog and hallucinations and highlights the invaluable support of community groups. This episode is a testament to the power of awareness, education, and unwavering support in overcoming the obstacles posed by narcolepsy.
Chapters:
- (00:06) - Narcolepsy Awareness
- (07:21) - Managing Narcolepsy and Work Life
- (13:31) - Challenges of trying to adopt with Narcolepsy
- (19:04) - Managing Narcolepsy
Highlights:
- (02:51 - 04:01) Journey to Narcolepsy Diagnosis (70 Seconds)
- (12:31 - 13:31) Narcolepsy and Self-Identity (60 Seconds)
- (16:32 - 17:38) Support and Understanding of Narcolepsy (66 Seconds)
- (21:57 - 24:08) Understanding and Managing Narcolepsy (131 Seconds)
- (29:16 - 30:58) The Red Button (102 Seconds)
Subscribe for more inspiring episodes, share to raise narcolepsy and idiopathic hypersomnia awareness, and join the conversation by sharing your experiences.
Follow us on our Social Media platforms for updates: https://www.instagram.com/narcolepsynavigatorspodcast/
www.linkedin.com/company/narcolepsy-navigators-podcast
Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.
Follow and support Narcolepsy Navigators:
www.napsforlife.com
Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast
***If you find these symptoms relatable, please seek medical advice.***
More shows like Narcolepsy Navigators Podcast
View all
The Beginner's Garden with Jill McSheehy
795 Listeners
Neuro Pathways: A Cleveland Clinic Podcast for Medical Professionals
36 Listeners
My rare disease
2 Listeners
Major Pain
46 Listeners
The MEDQOR Podcast Network
3 Listeners
Sleep Unplugged with Dr. Chris Winter
68 Listeners
The Mel Robbins Podcast
20,416 Listeners
Mayo Clinic Center for Sleep Medicine
3 Listeners