Rarely Typical Podcast

S2:E8, Hope in the Data: Why Clinical Trials Matter with Dr. John Moss


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In this episode of Rarely Typical, Gerry sits down with her own PH specialist, Dr. John Moss, to talk all things clinical trials. Together, they unpack the importance of participating in research, how clinical trials work, and the patient-doctor collaboration that makes it all possible.

Dr. Moss shares his insight from years in research and care, and Gerry reflects on how clinical trials—especially Sotatercept (Winrevair)—have drastically changed the trajectory of her life with Pulmonary Arterial Hypertension (PAH).

Whether you're a patient, caregiver, or healthcare provider, this conversation demystifies clinical research and explains why trials should never be a last resort—but instead, a pathway to hope, innovation, and better outcomes.

🔑 Key Takeaways:

* Why clinical trials are essential for rare diseases like PAH

* The impact of patient participation on future treatment options

* What it’s like to be in a clinical trial from both the doctor and patient side

* Breaking the myth that clinical trials are only for the "end of the line"

🔗 Resources Mentioned:

* ClinicalTrials.gov – Find active and recruiting trials



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Rarely Typical PodcastBy Gerry Langan