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London’s rush never stops—but for Imaarl Duprey, time did.

At 18, what should have been a typical New Year’s Eve turned into the beginning of a mystery illness that would steal weeks, even months, of her life at a time. Diagnosed with Kleine-Levin Syndrome (KLS), or Sleeping Beauty Syndrome, Imaarl found herself trapped in a cycle of disbelief, misdiagnosis, and isolation, waking up to a world that had moved on without her.

In this episode of Narcolepsy Navigators, Imaarl shares what it’s like to lose time, battle stigma, and fight to be believed. She dives into the emotional toll on her family, the frustration of an untreatable condition, and the resilience it takes to rebuild a life interrupted by sleep. Now a mental health advocate and researcher, she’s turning her story into awareness, challenging misconceptions, and proving that rare disorders deserve recognition.

Listen now for a powerful conversation on resilience, advocacy, and reclaiming time.

Chapters

(00:10) Living With Klein-Levin Syndrome
(10:50) Uncontrollable Sleep Episodes and Diagnosis
(14:41) Navigating Life With KLS Diagnosis
(21:44) Impact of KLS Episodes on Life
(27:53) Living With KLS
(36:51) Navigating Stigma Around KLS
(44:48) Navigating Uncertainty With KLS
(50:29) Navigating Life With KLS Challenges

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Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
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***If you find these symptoms relatable, please seek medical advice.***