Rarely Typical Podcast

S3:E3, 7 Years In: My Diagnosi-versary and the Lessons Along the Way


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Seven years ago, what I thought would be a quick trip to the ER turned into a life-changing moment—a diagnosis that would forever alter my life. In this special episode, I’m reflecting on my 7 year diagnosi-versary and the journey that’s unfolded since.

I share how I first stepped into advocacy, what pushed me to use my voice, and the lessons I’ve learned along the way—both about myself and about living with a chronic, life-threatening illness. I also talk openly about facing mortality at a young age, and how answering the question, “What’s your goal?” shaped not only my advocacy but the way I choose to live my life every day.

If you’ve ever wondered why I do what I do, or how I got started doing this, this episode is me sharing my heart with you.

What you’ll hear in this episode:

* Why I started advocating and what advocacy has taught me

* The biggest lessons I’ve learned in 7 years of living with PAH

* How facing mortality gave me clarity on my purpose

* What I’ve discovered about hope, resilience, and legacy

Disclaimer: I'm not a medical professional, just a professional patient. Rarely Typical is based on my personal experiences and is not intended to be medical advice. Always consult with a qualified healthcare professional for any medical concerns or decisions.



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Rarely Typical PodcastBy Gerry Langan