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S4E1: Kleine Levin Syndrome: Parenting Through The Challenges
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In this heartfelt episode of Narcolepsy Navigators, Gabrielle and Paul share their family’s journey of raising a child with Kleine Levin Syndrome (KLS), also known as “Sleeping Beauty Syndrome.” Speaking openly about the uncertainty, the emotional toll, and the small victories, they offer listeners an inside look at how KLS impacts their son’s daily life — from sleeping 16–20 hours a day during episodes to rediscovering joy when awake.
The conversation touches on:
- The challenges of finding a diagnosis in rural Maine.
- Navigating school, healthcare, and family life with a rare sleep disorder.
- What support systems truly mean for children and parents.
- Why raising awareness of KLS is critical to changing perceptions.
This episode is not only a story of resilience and advocacy, but also a reminder of the importance of community for families facing rare conditions.
Listen in and be inspired by their courage, honesty, and determination to give their son the best life possible.
Episode Out Now
Link: https://www.napsforlife.com/podcast/episode/80bdf6b0/s4e1-klein-levin-syndrome-parenting-through-the-challenges
#KleineLevinSyndrome #KLSAwareness #RareSleepDisorder #NarcolepsyPodcast #ParentingRareDisease #SleepHealthAdvocacy #ChildhoodSleepDisorder #InvisibleIllness #RareDiseasePodcast #KLSParentsPerspective #RareNeurologicalDisorder #IdiopathicHypersomnia #LivingWithKLS #RareDiseaseAwareness #SleepDisordersCommunity
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Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.
Follow and support Narcolepsy Navigators:
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***If you find these symptoms relatable, please seek medical advice.***
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By Kerly Bwoga
5
33 ratings
Leave a review!
In this heartfelt episode of Narcolepsy Navigators, Gabrielle and Paul share their family’s journey of raising a child with Kleine Levin Syndrome (KLS), also known as “Sleeping Beauty Syndrome.” Speaking openly about the uncertainty, the emotional toll, and the small victories, they offer listeners an inside look at how KLS impacts their son’s daily life — from sleeping 16–20 hours a day during episodes to rediscovering joy when awake.
The conversation touches on:
- The challenges of finding a diagnosis in rural Maine.
- Navigating school, healthcare, and family life with a rare sleep disorder.
- What support systems truly mean for children and parents.
- Why raising awareness of KLS is critical to changing perceptions.
This episode is not only a story of resilience and advocacy, but also a reminder of the importance of community for families facing rare conditions.
Listen in and be inspired by their courage, honesty, and determination to give their son the best life possible.
Episode Out Now
Link: https://www.napsforlife.com/podcast/episode/80bdf6b0/s4e1-klein-levin-syndrome-parenting-through-the-challenges
#KleineLevinSyndrome #KLSAwareness #RareSleepDisorder #NarcolepsyPodcast #ParentingRareDisease #SleepHealthAdvocacy #ChildhoodSleepDisorder #InvisibleIllness #RareDiseasePodcast #KLSParentsPerspective #RareNeurologicalDisorder #IdiopathicHypersomnia #LivingWithKLS #RareDiseaseAwareness #SleepDisordersCommunity
Support the show
Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.
Follow and support Narcolepsy Navigators:
www.napsforlife.com
Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast
***If you find these symptoms relatable, please seek medical advice.***
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