In this episode Mel chats with Heather Cox, a Sydney-based marketing professional and mother of two daughters. Heather's youngest, six-year-old Arianna, has Sotos syndrome, a rare genetic condition characterised by overgrowth and delayed development. Heather is a gun at NDIS goal-setting and shares how she's made Arianna's NDIS plan work for their family. Spoiler alert: sometimes this means choosing the playground over therapy sessions. 

Links to family support organisations:
Plumtree: https://plumtree.org.au/

Kindred: https://kindred.org.au/

Sotos Syndrome Australasia: https://sotos.org.au/ 

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