In this episode, Jess Ngaheu shares her personal experience as a medical mum and special needs mum, highlighting the continual adversity and advocacy required for her son, Hawaiki. She discusses the importance of a specific clinic within the children's hospital to provide the necessary care and support for children with dwarfism, like Hawaiki. Jess reveals that the government has pulled funding for this clinic, leaving medically complex children without the specialised care they need. She calls for listeners to help by contacting their MPs and advocating for the reinstatement of funding for the clinic. Jess emphasises the importance of medical contingency and support for all individuals, regardless of their differences.

Key Takeaways:

• How medical mums and special needs mums face continual adversity and advocacy for their children with special needs.
• A specific clinic within the children's hospital is needed to provide specialised care for children with dwarfism.
• The government has pulled funding for the clinic, leaving medically complex children without the necessary support.
• Listeners are encouraged to contact their MPs and advocate for the reinstatement of funding for the clinic.

Chapters: 

0:00:01- | Introduction to the podcast and the topic of adversity and advocacy for medical and special needs children

0:02:49 - Background on the unique medical conditions of  Hawaiiki

0:03:56 - Government funding for a clinic providing a necessary drug for children with dwarfism has been pulled

0:05:30 - Request for listeners to write to their MPs to advocate for the reinstatement of funding

0:06:45 - Conclusion and gratitude for support in advocating for special needs children

Quotes:

• If you're a medical mum or a special needs mum, the continual adversity that you cope with these kids is mind-blowing.
• "These medically complex children are not deserving of the medical care like every other human being gets. 
• I will never, ever give up and I will continually fight for these kids till the end of my days because they deserve it.
• "Because they are different doesn't mean that they don't deserve medical contingency, medical support, medical everything that they may need in their lifetime." - Jess Ngaheu

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Consultation & Training Services: We also offer consultation and training services to childcare centres and schools with special needs departments. If you know anyone who could benefit, please contact us 0410 053 611 / [email protected]

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