Stephanie Duesing tells the tale of how she found out her son had CVI. She finally discovered doctors who were prepared to assist her after years of searching for solutions. Stephanie has been able to find hope since learning that her son has CVI. She has been able to assist other families and has seen her son flourish.

Conversation Highlights:

{01:47} Stephanie’s story of raising a son with CVI

{09:35} When Doctors will not help

{12:56} Getting a diagnosis of CVI

{17:39} Brain Damage and the science behind CVI

{24:55} Stephanie’s son’s life today

{31:26} 6 Ps

 

Resources:

https://www.nei.nih.gov/about/news-and-events/news/vision-loss-children-whose-eyesight-may-be-2020-requires-new-diagnostic-and-teaching-strategies

 

https://www.sciencedirect.com/science/article/abs/pii/S0028393221002359

 

https://www.optometrytimes.com/view/getting-to-the-heart-of-pediatric-vision-loss-and-blindness

 

https://cviscotland.org/

 

https://www.perkins.org/our-work/cvi/

 

https://www.aph.org/product/vision-and-the-brain-understanding-cerebral-visual-impairment-in-children/

 

https://stephanieduesing.com/

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