Cindy Younan, founder of cvijourney.com and mother to Valentina (1.5 years), describes the day during her pregnancy when she found out about her daughter’s complications. There have been highs, lows and personal sacrifices since then, which Cindy has embraced with a positive spirit.

We talk about what went through her mind when she heard the terms severe ventriculomegaly, hydrocephalus and cortical visual impairment for the first time – and the steps she’s taken to educate herself and other parents who are experiencing the same thing.

 

Resources:

cvijourney.com

Surrey Place

Perkins CVI Symposium Wrap-Up Podcast

Pediatric Cortical Visual Impairment Society

Perkins CVI Hub

Constraint Induced Movement Therapy (CIMT)

Anat Baniel Method