In this episode of Talking Life, Rory speaks to Myra Ali, a famous journalist who has a condition called Epidermolysis bullosa (EB), or ‘Butterfly Skin’, where painful blistering makes sufferer’s skin and organs, as fragile as the wings of a butterfly. He’s also joined by Claire Mather, the Director of DEBRA, a U.K charity that specializes in treating and helping those with the condition.